Providing Researchers Access to Data Resources
The Data Exchange Core provides a prioritized, resource-effective process for Sanford Health researchers and external collaborators to access healthcare data for their research needs. The mission of the Core is to effectively analyze health care data to improve health services delivery and patient outcomes. The use of electronic health records (EHR) data empowers researchers to engage in translational, sustainable, and transdisciplinary research that can influence patient health outcomes. The Core supports activities preparatory to research, research studies, and quality improvement projects that have an EHR focus. The team assists Sanford researchers and external collaborators with data access while providing guidance on legal, regulatory, and privacy regulations for de-identified and protected health information (PHI). The Center for Health Outcomes and Population Research CoBRE directly supports the Data Exchange Core.
The Data Exchange provides the following services including:
- Honest broker provides access to Electronic Health Record (EHR) data including aggregate, de-identified, and limited data sets
- Properly de-identify data by generating unique, confidential keys which allows the addition of more study data in the future, if necessary
- Training in the use of on-demand tools (i.e. EPIC’s SlicerDicer)
- Management of submissions for data access committee approval(s) as needed
- Provide IRB and compliance assistance (in partnership with clinical research) for all EHR related research studies
- Development of collaboration agreements between Sanford investigators and external collaborators
Meet the Team
Arielle Selya, PhD
Dr. Selya is a National Institutes of Health-funded investigator whose research interests focus on a variety of population health topics, including the etiology of substance use and dependence, risk prediction and management of chronic health conditions and health care services delivery. Dr. Selya brings strong expertise in analyzing large datasets using a variety of advanced quantitative methods.
Jorge Lima, MD, MS
Senior Research SpecialistJorge Lima serves as the Honest Broker for the Data Exchange Core. He helps internal and external researchers with the process of obtaining Electronic Medical Record Data from Sanford’s data warehouse. He also is involved with the implementation of the OMOP (Observational Medical Outcomes Partnership) common data model. This will allow Sanford to be part of the OHDSI (Observational Health Data Sciences and Informatics) community with the aim of improving international data collaborative studies. He believes those tools can greatly contribute to make healthcare safe, effective and affordable.
Murat Sincan, MD, FAMIA
John A. McMillin
Senior Report Developer, Enterprise Data and Analytics
John A. McMillin is the Enterprise Data and Analytics contact for research. He assists with retrieving data from both the Clarity database, as well as other databases, in response to requests from researchers. He is Epic certified in the Clinical Data Model, and has familiarity with a variety of databases and applications utilized by Sanford.