Providing Researchers Access to Data Resources
The Data Exchange Core provides a prioritized, resource-effective process for Sanford Health researchers and external collaborators to access healthcare data for their research needs. The mission of the Core is to effectively analyze health care data to improve health services delivery and patient outcomes. The use of electronic health records (EHR) data empowers researchers to engage in translational, sustainable, and transdisciplinary research that can influence patient health outcomes. The Core supports activities preparatory to research, research studies, and quality improvement projects that have an EHR focus. The team assists Sanford researchers and external collaborators with data access while providing guidance on legal, regulatory, and privacy regulations for de-identified and protected health information (PHI). The Center for Health Outcomes and Population Research CoBRE directly supports the Data Exchange Core.
The Data Exchange provides the following services including:
- Honest broker provides access to Electronic Health Record (EHR) data including aggregate, de-identified, and limited data sets
- Properly de-identify data by generating unique, confidential keys which allows the addition of more study data in the future, if necessary
- Training in the use of on-demand tools (i.e. EPIC’s SlicerDicer)
- Management of submissions for data access committee approval(s) as needed
- Provide IRB and compliance assistance (in partnership with clinical research) for all EHR related research studies
- Development of collaboration agreements between Sanford investigators and external collaborators
Meet the Team
Tamara Winden, PhD, MBA, FAMIA
Core DirectorDr. Tamara Winden is Vice President of Research and Innovation at Sanford Health and Assistant Professor, Internal Medicine, at the University of South Dakota. Dr. Winden received her PhD from the University of Minnesota in Health Informatics with a minor in Cognitive Science. Her doctoral coursework focused on human computer interaction and usability and her dissertation research focused on developing a model representation of social determinants of health, specifically residence, living situation and living conditions. Dr. Winden has over 20 years of experience in healthcare information systems management and support. For the last 11 years she has focused on research informatics. Her clinical background is in the area of transplantation immunogenetics performing histocompatibility testing to match organ donors and recipients at the University of Minnesota. This genome work led her to get more involved in clinical informatics. Dr. Winden's research interests are focused on EHR usability, human factors engineering, and EHR tool design for optimal data capture, visualization, clinical decision support and research.
Jorge Lima, MD, MS
Jorge Lima serves as the Honest Broker for the Data Exchange Core. He helps internal and external researchers with the process of obtaining Electronic Medical Record Data from Sanford’s data warehouse. He also is involved with the implementation of the OMOP (Observational Medical Outcomes Partnership) common data model. This will allow Sanford to be part of the OHDSI (Observational Health Data Sciences and Informatics) community with the aim of improving international data collaborative studies. He believes those tools can greatly contribute to make healthcare safe, effective and affordable.
John A. McMillin
Senior Report Developer, Enterprise Data and Analytics
John A. McMillin is the Enterprise Data and Analytics contact for research. He assists with retrieving data from both the Clarity database, as well as other databases, in response to requests from researchers. He is Epic certified in the Clinical Data Model, and has familiarity with a variety of databases and applications utilized by Sanford.
Dr. Selya is a fee-for-service consultant and former Data Exchange Director with expertise in data analysis and mathematical modeling. She was in academia for 10 years, researching nicotine use behavior and addiction, especially among adolescents. She works now for Pinney Associates, which consults for JUUL Labs, Inc on tobacco harm reduction. Arielle utilizes a wide range of analytical methods in her research, such as longitudinal data analysis, structural equation modeling, propensity score methods, system dynamics modeling, and machine learning.
Katie Dehne is responsible for planning, tracking, and overseeing the data exchange requests that are submitted. She also assists the Honest Broker as well as the requestors with coordinating meetings and finding the right resources and people to help complete the data request. Katie graduated from SDSU with a B.S. in Biology and is currently working towards a Masters in Project Management at the Saint Mary’s University of Minnesota. Before joining Sanford Research she held positions in Quality Control at Baxter International Inc. and worked as a clinical research coordinator as well as a research protocol specialist at the Mayo Clinic.