Coordination of Rare Diseases at Sanford (CoRDS)
Based at Sanford Research, a nonprofit research institution, CoRDS is a centralized international patient registry for all rare diseases.
We coordinate the advancement of research into 7,000 rare diseases. Here’s how:
- We work with patient advocacy groups, individuals and researchers.
- We capture health information from individuals with a rare diagnosis, undiagnosed patients, unaffected carriers or at-risk patients.
- We connect researchers and patients and notify our participants of emerging clinical trials.
- We make the registry accessible. Participants can enroll for free and researchers can access it for free.
For Researchers: Access the CoRDs Registry
If you’re a researcher with IRB approval and are interested in accessing the CoRDS Registry, complete the CoRDS Researcher Access Request Form and return it by email.
Learn More
Meet Our Partners
AMEN Support
American Multiple Endocrine Neoplasia Support, for people living with MEN1, 2A and 2B
Cornelia de Lange Syndrome (CdLS) Foundation
For people living with Cornelia de Lange Syndrome (CdLS)
Cure VCP Disease
For people living with diseases caused by a mutation of the Valosin Containing Protein (VCP) gene
Curing Retinal Blindness Foundation
For children whose vision is impaired due to CRB1 degenerative retinal disease
DNM1
A support group for DNM1 genetic mutation
HSAN1E
For people living with Hereditary Sensory and Autonomic Neuropathy, Type 1E (HSAN1E)
Hypersomnia Foundation
For people living with idiopathic hypersomnia (IH) and related sleep disorders
International Foundation for Gastrointestinal Disorders (IFFGD)
For people living with IFFGD
Kawasaki Disease Foundation
For people living with Kawasaki disease (KD) or Kawasaki syndrome
Kawasaki Disease Foundation Australia
For people living with Kawasaki disease in Australia
Marinesco-Sjogren Syndrome Support Group
For people living with Marinesco-Sjogren Syndrome (MSS)
One in a Billion Foundation
For people living with an undiagnosed and rare disease who would benefit from personalized and genomic medicine
Recurrent Respiratory Papillomatosis Foundation
For people living with Recurrent Respiratory Papillomatosis (RRP)
SPG15 Foundation
For people living with SPG15
Team Telomere
For people living with Dyskeratosis Congenita and Telomere Biology Disorders
Wiedemann-Steiner Syndrome Foundation
For people living with Wiedemann-Steiner syndrome (WSS)
Sanford Health News
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Grad student chases science career on unique path
‘Nontraditional student’ Brook Busselman is a Sanford researcher, husband and dad
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Sanford Health seeks residents’ input on local health needs
Survey asks about physical, social and economic factors that impact health
Classes & Events
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Teen Science Café
Mon 01/25/21 6:00 PM - Mon 01/25/21 7:00 PM
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Sanford PROMISE Community Lecture Series
Tue 03/30/21 5:30 PM - Tue 03/30/21 6:30 PM