Coordination of Rare Diseases at Sanford (CoRDS)
Based at Sanford Research, a nonprofit research institution, CoRDS is a centralized international patient registry for all rare diseases.
We coordinate the advancement of research into 7,000 rare diseases. Here’s how:
- We work with patient advocacy groups, individuals and researchers.
- We capture health information from individuals with a rare diagnosis, undiagnosed patients, unaffected carriers or at-risk patients.
- We connect researchers and patients and notify our participants of emerging clinical trials.
- We make the registry accessible. Participants can enroll for free and researchers can access it for free.
For Researchers: Access the CoRDs Registry
If you’re a researcher with IRB approval and are interested in accessing the CoRDS Registry, please contact the CoRDS team directly to complete the Access Form.
Great Plains Rare Disease Summit
The Great Plains Rare Disease Summit is an annual event focused on rare disease research and advocacy.
Check back soon for more information about the 2021 event!
Rare Disease Day
Light-Up A Landmark
To show support for rare diseases across the world the National Organization for Rare Disorders (NORD) is leading a Light-Up a Landmark campaign as focus of Rare Disease Day 2021. CoRDS has organized for a few landmarks within the Sanford Health footprint to be illuminated in the rare disease day colors (Blue, Pink, Purple, and Green). The list of landmarks with dates is below.
- Arc Of Dreams | Downtown Sioux Falls | February 27th & 28th 2021
- Falls Park | Downtown Sioux Falls | February 28th 2021
Social Media Engagement
Help spread awareness for Rare Disease Day by sharing YOUR work with rare diseases and why Rare Disease Day is important to you! Select one [or all!] of the questions below to take part.
STEP ONE: Download and print the flyer(s). To download, click on the links above.
STEP TWO: Write in your answer
STEP THREE: Snap a photo of you (or a group) holding up your flyer
STEP FOUR: Post the photo on your favorite social media channel using #RareDiseaseDay and #SanfordRare. Tag CoRDS on Facebook or Twitter using @SanfordCoRDS.
Meet Our Partners
A support group for DNM1 genetic mutation
For people living with IFFGD
Kawasaki Disease Foundation Australia
For people living with Kawasaki disease in Australia
One in a Billion Foundation
For people living with an undiagnosed and rare disease who would benefit from personalized and genomic medicine
For people living with SPG15
Sanford Health News
World-renowned immunologist and oncologist plans to continue research team’s work
Penn Medicine professor wins nation’s largest award in medicine from a health system
Classes & Events
Tue 04/27/21 6:00 PM - Tue 04/27/21 7:00 PM
Wed 05/26/21 9:00 AM - Wed 05/26/21 3:00 PM