Coordination of Rare Diseases at Sanford (CoRDS)

Coordination of Rare Diseases at Sanford (CoRDS)

Based at Sanford Research, a nonprofit research institution, CoRDS is a centralized international patient registry for all rare diseases.

We coordinate the advancement of research into 7,000 rare diseases. Here’s how:

  • We work with patient advocacy groups, individuals and researchers.
  • We capture health information from individuals with a rare diagnosis, undiagnosed patients, unaffected carriers or at-risk patients.
  • We connect researchers and patients and notify our participants of emerging clinical trials.
  • We make the registry accessible. Participants can enroll for free and researchers can access it for free.

Enroll Now

Rare Disease Day 2022

Monday, February 28 see events below

Learn More

Learn More

Stay Connected

Events

Great Plains Rare Disease Summit

Upcoming Events:

12th Annual Great Plains Hybrid Rare Disease Summit

Friday, May 20th 2022 Scientific Day

Saturday, May 21st 2022 Family, Caregiver, Patient Advocacy Day

Virtual or In Person Options
For more information: https://research.sanfordhealth.org/classes-and-events/sanford-cords-great-plains-rare-disease-summit

Past Events:

The 11th Annual Virtual Great Plains Rare Disease Summit

November 18-19, 2021.

Watch Day 1 Webinar (November 18)

Watch Day 2 Webinar (November 19)

Rare Disease Day

2021

Light-Up A Landmark

 To show support for rare diseases across the world the National Organization for Rare Disorders (NORD) is leading a Light-Up a Landmark campaign as focus of Rare Disease Day 2021.  CoRDS has organized for a few landmarks within the Sanford Health footprint to be illuminated in the rare disease day colors (Blue, Pink, Purple, and Green).  The list of landmarks with dates is below.  

  • Arc Of Dreams | Downtown Sioux Falls | February 27th & 28th 2021
  • Falls Park | Downtown Sioux Falls | February 28th 2021

 

Social Media Engagement

Help spread awareness for Rare Disease Day by sharing YOUR work with rare diseases and why Rare Disease Day is important to you! Select one [or all!] of the questions below to take part. 

  • What does Rare Disease Day mean to you?
  • What gives you hope?
  • Why is Rare Disease Day important to you?
  • Why are you involved with rare disease research?
  •  

          

    STEP ONE: Download and print the flyer(s). To download, click on the links above.

    STEP TWO: Write in your answer

    STEP THREE: Snap a photo of you (or a group) holding up your flyer

    STEP FOUR: Post the photo on your favorite social media channel using #RareDiseaseDay and #SanfordRare.  Tag CoRDS on Facebook or Twitter using @SanfordCoRDS.

    2022

    Light-Up A Landmark

     To show support for rare diseases across the world the National Organization for Rare Disorders (NORD) is leading a Light-Up a Landmark campaign as focus of Rare Disease Day 2022.  CoRDS has organized for a few landmarks within the Sanford Health footprint to be illuminated in the rare disease day colors (Blue, Pink, Purple, and Green).  The list of landmarks with dates is below.  

    • Arc Of Dreams | Downtown Sioux Falls | February 26th, 27th & 28th 2022
    • Falls Park | Downtown Sioux Falls | February 26th, 27th & 28th 2022

     

    Social Media Engagement

    Help spread awareness for Rare Disease Day by sharing YOUR work with rare diseases and why Rare Disease Day is important to you! Select one [or all!] of the questions below to take part. 

     

  • What does Rare Disease Day mean to you?
  • What gives you hope?
  • Why is Rare Disease Day important to you?
  • Why are you involved with rare disease research?
  •  

     

     

     

    STEP ONE: Download and print the flyer(s). To download, click on the links above.

    STEP TWO: Write in your answer

    STEP THREE: Snap a photo of you (or a group) holding up your flyer

    STEP FOUR: Post the photo on your favorite social media channel using #RareDiseaseDay and #SanfordRare.  Tag CoRDS and Sanford Research on Facebook or Twitter using @SanfordCoRDS and @SanfordResearch.

    Sanford Health News