Coordination of Rare Diseases at Sanford (CoRDS)
Based at Sanford Research, a nonprofit research institution, CoRDS is a centralized international patient registry for all rare diseases.
We coordinate the advancement of research into 7,000 rare diseases. Here’s how:
- We work with patient advocacy groups, individuals and researchers.
- We capture health information from individuals with a rare diagnosis, undiagnosed patients, unaffected carriers or at-risk patients.
- We connect researchers and patients and notify our participants of emerging clinical trials.
- We make the registry accessible. Participants can enroll for free and researchers can access it for free.
For Researchers: Access the CoRDs Registry
If you’re a researcher with IRB approval and are interested in accessing the CoRDS Registry, complete the CoRDS Researcher Access Request Form and return it by email.
Meet Our Partners
One in a Billion Foundation
For people living with an undiagnosed and rare disease who would benefit from personalized and genomic medicine
For people living with SPG15
Sanford Health News
Center for Biobehavioral Research surveys patients remotely, in real time
Jasmine Johnson learned more about research and herself by working in lab