Coordination of Rare Diseases at Sanford (CoRDS)
Based at Sanford Research, a nonprofit research institution, CoRDS is a centralized international patient registry for all rare diseases.
We coordinate the advancement of research into 7,000 rare diseases. Here’s how:
- We work with patient advocacy groups, individuals and researchers.
- We capture health information from individuals with a rare diagnosis, undiagnosed patients, unaffected carriers or at-risk patients.
- We connect researchers and patients and notify our participants of emerging clinical trials.
- We make the registry accessible. Participants can enroll for free and researchers can access it for free.
For Researchers: Access the CoRDs Registry
If you’re a researcher with IRB approval and are interested in accessing the CoRDS Registry, complete the CoRDS Researcher Access Request Form and return it by email.
Learn More
Meet Our Partners
AMEN Support
American Multiple Endocrine Neoplasia Support, for people living with MEN1, 2A and 2B
Cornelia de Lange Syndrome (CdLS) Foundation
For people living with Cornelia de Lange Syndrome (CdLS)
Cure VCP Disease
For people living with diseases caused by a mutation of the Valosin Containing Protein (VCP) gene
Curing Retinal Blindness Foundation
For children whose vision is impaired due to CRB1 degenerative retinal disease
HSAN1E
For people living with Hereditary Sensory and Autonomic Neuropathy, Type 1E (HSAN1E)
Hypersomnia Foundation
For people living with idiopathic hypersomnia (IH) and related sleep disorders
Kawasaki Disease Foundation
For people living with Kawasaki disease (KD) or Kawasaki syndrome
Kawasaki Disease Foundation Australia
For people living with Kawasaki disease in Australia
Marinesco-Sjogren Syndrome Support Group
For people living with Marinesco-Sjogren Syndrome (MSS)
One in a Billion Foundation
For people living with an undiagnosed and rare disease who would benefit from personalized and genomic medicine
SPG15 Foundation
For people living with SPG15
Wiedemann-Steiner Syndrome Foundation
For people living with Wiedemann-Steiner syndrome (WSS)
Sanford Health News
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Music triggers memories in Good Samaritan Society study
Dementia patients love their high school era music as much as the rest of us
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Brain researcher L-J Pilaz is ‘like a discovery junkie’
New addition to Sanford Research looks at neural stem cells’ role in development
Classes & Events
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Teen Science Cafe
Thu 01/30/20 5:30 PM - Thu 01/30/20 7:15 PM
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Teen Science Cafe
Thu 02/27/20 5:30 PM - Thu 02/27/20 7:15 PM