Coordination of Rare Diseases at Sanford (CoRDS)

Coordination of Rare Diseases at Sanford (CoRDS)

Based at Sanford Research, a nonprofit research institution, CoRDS is a centralized international patient registry for all rare diseases.

We coordinate the advancement of research into 7,000 rare diseases. Here’s how:

  • We work with patient advocacy groups, individuals and researchers.
  • We capture health information from individuals with a rare diagnosis, undiagnosed patients, unaffected carriers or at-risk patients.
  • We connect researchers and patients and notify our participants of emerging clinical trials.
  • We make the registry accessible. Participants can enroll for free and researchers can access it for free.

Enroll Now

Rare Disease Day 2022

Monday, February 28

Learn More

Learn More

Stay Conected


Great Plains Rare Disease Summit

The 11th Annual Virtual Great Plains Rare Disease Summit

November 18-19, 2021.

Watch Day 1 Webinar (November 18)

Watch Day 2 Webinar (November 19)

Rare Disease Day


Light-Up A Landmark

 To show support for rare diseases across the world the National Organization for Rare Disorders (NORD) is leading a Light-Up a Landmark campaign as focus of Rare Disease Day 2021.  CoRDS has organized for a few landmarks within the Sanford Health footprint to be illuminated in the rare disease day colors (Blue, Pink, Purple, and Green).  The list of landmarks with dates is below.  

  • Arc Of Dreams | Downtown Sioux Falls | February 27th & 28th 2021
  • Falls Park | Downtown Sioux Falls | February 28th 2021


Social Media Engagement

Help spread awareness for Rare Disease Day by sharing YOUR work with rare diseases and why Rare Disease Day is important to you! Select one [or all!] of the questions below to take part. 

  • What does Rare Disease Day mean to you?
  • What gives you hope?
  • Why is Rare Disease Day important to you?
  • Why are you involved with rare disease research?


    STEP ONE: Download and print the flyer(s). To download, click on the links above.

    STEP TWO: Write in your answer

    STEP THREE: Snap a photo of you (or a group) holding up your flyer

    STEP FOUR: Post the photo on your favorite social media channel using #RareDiseaseDay and #SanfordRare.  Tag CoRDS on Facebook or Twitter using @SanfordCoRDS.

    Sanford Health News

    Classes & Events