Coordination of Rare Diseases at Sanford (CoRDS)

Coordination of Rare Diseases at Sanford (CoRDS)

Based at Sanford Research, a nonprofit research institution, CoRDS is a centralized international patient registry for all rare diseases.

We coordinate the advancement of research into 7,000 rare diseases. Here’s how:

  • We work with patient advocacy groups, individuals and researchers.
  • We capture health information from individuals with a rare diagnosis, undiagnosed patients, unaffected carriers or at-risk patients.
  • We connect researchers and patients and notify our participants of emerging clinical trials.
  • We make the registry accessible. Participants can enroll for free and researchers can access it for free.

How to Apply

If you’re a researcher with IRB approval and are interested in accessing the CoRDS Registry, complete the CoRDS Researcher Access Request Form and return it by email.

 

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