Access the CoRDS Registry
The Coordination of Rare Diseases at Sanford (CoRDS) Registry is a centralized international patient registry seeking to advance rare disease research for over 7,000 conditions. We capture patient health information related to rare diseases and make it available to researchers.
If you’re a researcher or a key stakeholder in the rare disease community, complete our registration form here. Once you’re approved, you’ll receive a username and password that allows you to access the registry.
In the portal, you can:
- Search how many participants are in the CoRDS Registry with a specific type of disease or condition.
- Find which diseases are represented with each advocacy group CoRDS has a partnership with.
- Submit a request for data or for CoRDS to contact participants on your behalf about a clinical trial or study.