Rare Disease Day

Rare Disease Day 2023

Rare Disease Day is celebrated on the last day of February every year and is a special day for rare disease patients, researchers, and advocates. Rare Disease Day is celebrated in February, because it has a 'rare' number of days. There are over 300 million people worldwide living with a rare disease. Together across borders, and across the 6000+ rare diseases we work towards more equitable access to diagnosis, treatment, care and social opportunity. The Coordination of Rare Diseases at Sanford takes part each year in the celebration. It brings together the entire community to highlight the challenges that people with rare diseases face. To add to the visibility of this cause, many monuments and public buildings around the world have been lit up in the Rare Disease Day colors - blue, green, pink, and purple - to show solidarity with those affected by rare diseases. In Sioux Falls, SD both Falls Park and the Arc of Dreams will be illuminated during this special time. Other initiatives to recognize Rare Disease Day include local community fundraisers such as at Oh My Cupcakes and social media campaigns showing support with photo filters, quote cards and the hashtags below. On top of these activities, researchers and advocates also use this time to educate people about rare diseases so that more can become aware of them. These efforts are important for encouraging greater awareness about these conditions and increasing understanding among family members, peers, and healthcare providers so that individuals affected by a rare disease can receive the best possible care.

 

Social Media Engagement

Help spread awareness for Rare Disease Day by sharing YOUR work with rare diseases and why Rare Disease Day is important to you! Select one [or all!] of the questions below to take part. To download additional Rare Disease Day photo filters and other campaign materials, follow this link.

 

  • What does Rare Disease Day mean to you?
  • What gives you hope?
  • Why is Rare Disease Day important to you?
  • Why are you involved with rare disease research?
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    STEP ONE: Download and print the flyer(s). To download, click on the links above.

    STEP TWO: Write in your answer.

    STEP THREE: Snap a photo of you (or a group) holding up your flyer.

    STEP FOUR: Post the photo on your favorite social media channel using #RareDiseaseDay and #SanfordRare.  Tag CoRDS on Facebook or Twitter using @SanfordCoRDS.